Wednesday, 16 November 2011

Hope and dispair...

October 25th 2011.   What where you doing on that day? I know  my mate DB would be the first kid with his hand shooting to the sky hissing “sir, sir, I know the answer, sir, please sir, me sir…”  He’d know what he was doing that day because it was his 31st birthday… and seeing as he currently works and dwells on a massive F**K OFF luxury yacht moored in Monte Carlo, I’m sure he’d remember that day well… unless of course he’d got shore leave.   So if he’d decided to hit the €8 lemonchello’s that the Russian and I enjoyed with him there, with him a year ago, then his memory might be a bit more wooly.  

Other kids in this classroom in my head, happily sat on the ‘groovy rug,’ enjoying their free daily pint of milk… (yes, this classroom metaphor/image has been created in my mind in the days before Maggie Thatcher decided all junior school kids could do without their free pint of daily milk!   Instead she spent  billions on saving 60 sheep botherers, in the Falkland Isles and blew the budget for kids milk!)   Sorry, I digress from my class room…

So… three other pupils that can immediately answer my question and have all got a limb thrust skywards are both my parents and of course…   The Russian.

This is my record of events on Tuesday the 25th of October…

“BONG BURRP DING!!! BONG BURRP DONG!!!” BLIIP BLUUP….BLIIP BLUUP”  

“What the EFF….. oh… oh….guys… I’m gonna faint… IM GOING TO FAINT…”   and I did!

There was my super team all lined up on one side of the bed… my mum stroking my head, as it was whipping from side to side…   “come on Chris, I told myself, keep your breathing regular… keep your cool, they’re just pumping your stem cells back into you… you’ll need these to quicken the recovery process… keep your cool, keep your cool, man….


“BONG BURRP DING!!! BONG BURRP DONG!!!” BLIIP BLUUP….BLIIP BLUUP”  

What the feck is that massive noise?    What kind of machine have they got me entwined with now…. Don’t look... don’t look… who am I kidding… I cant even see… my eyeballs are rattling so fast in their sockets the room is blurred…   why are there 2 nurses to do this ‘simple’ treatment if its so straight forward….  Keep your cool ivin, keep your cool…  uh uh uh…. Who am I kidding… I think I’ll stick to the fainting and try not… zzzzzzzzzzzz”


“BONG BURRP DING!!! BONG BURRP DONG!!!” BLIIP BLUUP….BLIIP BLUUP”  

“Chris…   Chris can you hear me?”   It was Laura, one of the SHO doctors who had her pretty face and sharp, blonde bob about 4 inches from mine… (I’m minus the sharp blonde bob!)  

“Ugh?  Who?   This aint my room…. You’re not my mum!!!”
nb… that line is for Charlie!

“what’s going on Laura, have we started the transfusion yet…?”

“No.”

“Aww, Bo??ocks!”

Now there was my super support team, 2 nurses and now about 3 different doctors surrounding my bed.    I looked in the far corner and there was this 3 foot sandy coloured bin on wheels, with a domed hat set off at a jaunty angle that was letting lots of ‘top of the pops’ dry ice pour out over the top and drift away into nothing.   It looked like the start of a cliff Richard concert.   I guessed my frozen stem cells were still in that old R2D2 wannabe…   if I wasn’t such a woss they’d be halfway in my body by now and I wouldn’t have 40 people around the bed trying to measure my sats, blood pressure and heart rate…


“BONG BURRP DING!!! BONG BURRP DONG!!!” BLIIP BLUUP….BLIIP BLUUP”  

yup that sodding thing’s still in the room.   I was  connected to this thing that bleats at such a volume every time my blood pressure changes or something…   the docs were worried because my pulse rate had plummeted to below 50 to about 42, when it was all coming on top in my mind and I decided it best to ‘wig out’ and faint!

So, October the 25th anytime around 2pm British summer time….   That’s where I was at… thrashing around in the bed, seeing my room crashing around like an earthquake was going off and then dipping in and out of consciousness.   

With some excellent teamwork from my dad and the Russian on the foot rubbing front to keep me in a state of semi comatose, the doctors dispersed and two of my favourite nurses, Arleen and Menchie managed to get on with returning the idiot cells back to the idiot, with minimal fuss.   Id got some music on the IPod to cut out the….


“BONG BURRP DING!!! BONG BURRP DONG!!!” BLIIP BLUUP….BLIIP BLUUP”  

and my super mum, stroking my baldie swede was enough to keep me calm. The stem cells were replaced without any of the nasty side effects that they are obliged to share with you, to really put the wind up your sails!   In fact the whole two bag dose was administered within an hour.   

Sadly for me I was due for 3 bags of stem cells the very next day!!!   But now I knew what to expect and with all my anti panic personnel standing by in their various positions and with my I pod set to play all… the second day went off without so much as a….


“BONG BURRP DING!!! BONG BURRP DONG!!!” BLIIP BLUUP….BLIIP BLUUP”  

... from that daft new machine.   So after 3 bags full of stem cells it was just a matter of sitting it out and waiting for all my blood levels, including the key neutrophils, to come up to the required levels for me to get sent home.   0.5 is the magic number for my neutrophils to reach so that I’m strong enough to fight infections and look after myself.    Sadly for me, as I write they are still a big fat ZERO!   I’m told that once there is a sign of them coming up they can replenish themselves very quickly.   A nice chap here called Gary, told me that when they came back for him they started after 10 days and he was sent home after 2 weeks.

So, that is the current situation.   Waiting around trying very hard not to get ill and infected… waiting for those magic little neutrophils to reappear.   Diet is the main problem, closely followed by epic boredom and a servere lack of concentraton.    But sadly there is still no sign of the blood levels rising and I’m starting my 5th week!!!

On a total other note… face guff… er, I mean facebook!   Whoa there, Lesley!   How many peep’s on there, strutting your stuff?!?!?!?   It is an absolute inspiration to see all the messages and big up’s to one’s self!   I know I’ve said it before but I really wish I could reply to one and all but my hands would fall off typing for ever!

I will mention four special things on there as a slight rule breaker to either pee you off if you didn’t make the ‘Tony Heart gallery’ of getting a mention or inspire you to get a 'big up' by, er, I dunno, filming yourself, naked, fire swallowing whilst riding a camel… or, hang about… something really crazy, like after riding all the way to London from Rotherham (all for charity, mate!)… then seeing how great the south is and going back to the north!!! Sean! ;-)

Nah… kidding mate….   Thank you so much.   (plus the south is full of wa…rs!   (true!   Try driving down here!)

So… my fab 4…

Looney… yeah yeah piss off about the Rolex, Omega’s are much better anyway…   and yeah £1,200 a night and we still had to boil our eggs in the kettle…   but I cant remember why we put gaffa tape on the windows of an apartment on the 28th floor that had more floor space that most 3 bed houses…   and it had 4 toilets including one for the maid…

Tory boy… thank you for the message of support from my old Swansea mukka, Johnny Hartson….  We’re Bessie mates now and I am an official celeb botherer!!!

To all those brave men and women of great Britain that have hit the ‘movember’ campaign trail with me in mind…   thank you ladies…   Mitch,   I think yours was the best, although the “dubious ‘tasche committee” might have something to say about that!   Laura, even if it was accidental…  remember some of the greatest discoveries by man were purely by accicident… as was the first ever free range, home grown “flavour savour” I’m sure!

Lastly and mostly….

Sweeney, I hope you've got your ears on, good buddy, when I shout out to...

Lee Lording…   MEETING MARK GARDENER!!!???!!!   WHERE???   WHEN???   HOW???   DID YOU ASK HIM IF HIS OLD BAND 'RIDE' ARE GETTING BACK TOGETHER ANY TIME SOON, LIKE THE STONE ROSES?   DOES HE STILL SEE ANDY BELL?   WHY DO YOU ALWAYS HAVE YOUR BLOODY EYES SHUT IN PHOTO’S?   (LIKE THE ONE I TOOK OF YOU AND DAVE GROLL IN DUBLIN!)    AND FINALLY DID YOU TELL HIM ABOUT THE GREAT NIGHT WE HAD IN EAST LONDON WHERE HE DIDN’T SHOW FOR A GIG THAT WAS REALLY NON EXISTANT IN THE FIRST PLACE!!!???!!!  

I still think about that night, it was an absolute classic!   Just the three of us out to stand at the bar and not witness any gig… great times.   So far in my life I’ve turned up for a gig that didn’t happen and a home Millwall match that was being played away!  Wuss up, cous!!!   ;-)

Hope and despair then…  

Hope… you’ve always got to have it with you at all times… 

Despair…  when you’re banged up in hospital whilst yer mates are out and about meeting your all time hero’s!!!  

I dunno…   cancer, eh?!?

Tuesday, 11 October 2011

Hello again...


The climb up the stairs to the 3rd floor nearly wiped the floor with me but my doctors have told me exercise is good. Inside it was standing room only. Not bad for £25 to get in! Not that that mattered, sam, reggie's brother, had insisted he'd pay for my ticket anyway. Inside It was loud and very very hot. The first fight was already well into round 2. The floor to ceiling mirrors that adorned the Walls were filling up with sweaty condensation nicely. Ah! I found a box at the back of the gym to rest my old pile of bones on! I was knackered! I'd already walked from my gaff all the way down the hill to the station AND all the way from Shoreditch high Steet tube to the gym!

Ding ding! The two fighters returned to their corners to confess to their trainers about just how scared they really were... Or at least that's what i'd be doing if I was in that ring with loads of sweaty skin heads shouting at me! And another one trying to clump me!!! (actually in my current folical state I fitted right on in there!)

The ring girl clambered her way through the middle and top ropes with all the runway attitude she could muster... She must've been wearing underwater mascara or whatever, what with the levels of moisture and testosterone in the air... God knows how she didn't look like Alice cooper at this point. We all had a good wolf whistle and checked out her knockers for a bit (which included you, Helen, I saw you staring!) and then the poor cow bundled herself back through the ropes!

Round 3. Boof bosh bish... Ding ding ding... It was all over and so the MC announced... "ladies and gentlemen lets hear it for mmmh mmh mmmh whooo mmmmh and all the way from new York... wooh mmmh mmh woo mmmhhh!"

God only knows! Shouting only makes it worse when you've got a seventeen year old, knackered microphone in your hand!

So... The stage was set for the second bout on tonights London vs new York fight night card; "stars and swipes"... See what they did there? Well… The announcer strikes up again... "wooh mmmh hhmm huurr... From new york... 'Sweet' robbie dyson!!!”   Out stepped my friend Reggie... (his nickname at work... Mine's Milton by the way!)  to the clash song "the guns of Brixton" (where he dwells) and sporting the biggest tattoo emblazing the words "south London" on his right shoulder. Which is a bit confusing to anyone expecting a native new yorker to step out of a yellow cab.   instead we got, "all the way from barnes, which is a very posh bit of south west London, its reggie... Fighting for the yanks!!!"


What?!? What the hell is going on!?!   Reggie… you’re on the wrong team!   He’s about as American as Television (we brits invented that!) or the muppet show!!! (again… if you do some research the original show was turned down by  the US tv networks and picked up by the limies!!!

Nah! He wasn’t picked by mistake. Rob, to use his proper name, had been over to dear old NYC to represent the US gym fitsroy lodge in a fight and now he had been asked to do it again on this side of the old pond.    Rob, a regular camera dude on the old sky footie, was now all set in the ring.   There was a lull and so at the top of my voice I shouted, “yoo hoo, reggie!” and waved as stupidly as poss! He gave me a smile and a knowing nod and casually went back to his pre bout meditation, pacing about and the silent passing of wind… no doubt!

Then out came the brit to face the er, brit and the first round got cracking…. “COME ON ROB/REGGIE” Helen, (Reggie’s Missus) and I shouted in unison… most probably confusing the hell out of everyone around us.  Sam started slapping his paper in his hands causing a right old din and everyone else… the skin heads, the chavs, the hoxton square trendy kids, one or two city boys in their wide awake suits… “yah, yah, ive got 10k on the yank!”… all started cheering the boys on.

Round 1… Good stuff… just a bit of kissing and cuddling to start… rob with the longer reach was stepping off the other geezer and measuring him up and weighing him out… clump, bump, nothing too sinister but boy was it exciting watching someone you know in the ring bobing and weaving and what could only be described as running away backwards! (ONLY JOKING, ROB!)  

Round 2… a little more edgy and faster paced… I was up on my toes bobing and weaving about like I knew the caper and all the moves…. Just to put the wind up all those nutters around me and let them know that I was bald cos I’m well hard, not because I’m as weak as a kitten and quite ill!   “GO ON REGGIE… CLUMP THE GEZZER!!!  HIT HIM!!! BISH BASH BOSH!!!! (to quote my dad!)   my god this was BRILLIANT and the fight was so well balanced it was anyones!
     
DING DING DING!

‘Alice Cooper’ got up for the last time and shoved herself back into the ring… and held aloft the card indicating It was the final round…. Rob had 3 minutes to get the win!   I, at this point did something that ive been doing for years.   Making a statement in my head thus… “if reggie wins this fight, I’ll win mine!”     there you are you city bankers… puts your £10k down the shitter don’t it!?!    I have been doing this mini self bet thing for years..   if I can do x, y, z  I’ll win this match or get that train set for Christmas or this flat will be mine or I’ll one day own that car….   Things like if I can get through that closing door in front of me, indianna jones style, without touching it or if i can wash my hands with just the hot water quick enough before I get scalded… ect ect,  only this time ive been doing it with the big C!

So… no pressure, then reggie…. Lets teach these English softies a thing or two and get me back to good health!   DO IT FOR ME AND THE WHOLE OF AMERICA, REGGIE!!!!

ROUND 3…….  No sooner had the bell finished its second chime, reg was up out of his corner on the far side and moving round to our left across the centre of the ring.   The other dude was matching his move with his back to us and soft footing it to our right, on the turn.   A couple of little exploratory fists were thrown about the place causing the ‘lovers’ to turn more in the same direction so now reg had his back to us as we were looking over his right shoulder at this guy’s squished up mush in his snug fitting head guard.   This gave us the perfect view for what followed… “SMACK!”… KNOCK DOWN!!!   I cant be certain because it happened in a nano second, whether rob had used his left to distract the guy then POW! Jabbed him square into his ‘boat race’ and sent the guy down onto his back!   Yesss!!!   Brilliant!!!  WOO HOO we’re in the clear… two points for a knock down sam was telling me… so all he had to do was stay away from any big punches and the round was his!!!   

The guy got up and was counted to about 8.   Then sent back into the fray by the ref.   I think this action of being put on his arse rather angered the poor chap and so went at rob like an enraged bulldog with its owner towel flicking his nuts!!!   “Stay out of it reggie… get out of there… move move”… were the uneducated cries from my gob!   The name of the game is control.   Keeping your mind calm and trying to pick a winning blow or series of moves that will get you the victory.    Reg had the reach and the coolness to box but this guy was irate to say the least!   Swinging and throwing everything he’d got!   My god this was exciting… rob was taking all the punches the guy could muster but he was scoring and Reggie needed to get back at him… which saw the last minute of the round with these two toe to toe exchanging fairly substantial blows in a blur of arms and gloves. both looking like the round would be theirs, if anything the other dude had landed a couple more critical blows but reggie had that knock down, come on reg, one more magic “BOOF” and it’ll be all settled….  Push rob push… come on please… forget what I was thinking before about staying away from him and his hits… just step into him and attack… yes… yes… no.. no… ooof…ow… yes.. come on… “DING DING DING DING DING DING DING DING DING!!!”

In one second the pair went from close quarter battle into the classic clumsy bear hug and then touch of gloves and nod of well done… but who was victorious???

“MMMH MMMMH MMMMMH UUUUHH UUHH MMMUUHH HHHUUMMM MMMUUHH”… bloody hell, the mc was really shouting now and everyone was on their feet (cos there were no chairs!) going nuts!!!   Easily the fight of the night!   What a great fight; it was so exciting!!! But who’s was it?

The ref grabbed the boys, by their gloves and led them to the middle of the ring… “LADIES AND GENTLEMEN… MMMMHHGG HUMMM UUMMHH GGGUUHH HHHHMMMM  MMMHHH………. It didn’t matter what was being said all we had to see was who’s glove was going up above his head…  then the ref flexed his ample belly and low and behold…   up went BOTH RED AND BLUE GLOVES….  DRAW!!!!  

The result just goes to show… the uncertainty of my fight goes on… but I WILL win!!!


Hello everyone… how’s tricks,

I know it’s been a while, to say the least for which I apologize profusely.   I am in a good phase of my 3rd phase of my big fight.    Sadly for me the second lot of chemo I was on, GAMEC, didn’t work out for me.   That one I described as the mega core regime, with all the hard side effects and long periods of hospitalization. 

I was released from st barts on the 7th of july, weaker and more reliant on my family than almost ever before, if you count the nappy wearing years of my life.    Since then we’ve had a massive home improvement project taking place, which at times, come as a great distraction in my life.   For the early part I was back and forth to hospital for regular blood tests to make sure the crap was on its way out of my body… but only into few weeks of my early remission I got ‘that call.’   I can tell when it’s the Doctors calling… my phone shows ‘blocked’ on the screen and if you’re not expecting a scan or clinic appointment you can be sure its new news.

So… things were back on the turn for the worse and a new tack was required.  

We saw the creative Dr Shamash, my consultant and all things large cheese wise, when it comes to cancer fighting!   (even going so far as creating the afore mentioned GAMEC course, himself.)   during the clinic, which was a great time of despair, the (very) good doctor calmed my nerves and partially allayed my fears with a very seemingly positive attitude, ‘well that didn’t work so now we push on and try the next thing’…..   he cooled me down to the extent that I even had the temerity to apologise for spoiling his GAMEC study.

So what is the next thing for little old me?   Its High Dose Chemotherapy… HDC…   as hard as it sounds apparently.   It’ll require at least another 3 weeks in the big house as they administer and then monitor me as I fall to pieces again!   Not looking forward to that at all!    But as I cant wait to get started so I can get it finished there is the small matter of the pre chemo, chemo that I’ve been started on.   Its called IPO.   Its is given in 3 week doses every Tuesday.   Starting on the first Tuesday with about 6 hours and then two Tuesdays of an hour bag of crap! Then the following Tuesday the cycle starts again with the long 3 bag 6 hour jobbie.   I am now on the 3rd cycle of a potential 4.    It will all come down to a ct scan and tumour markers results for the doc to admit me and get me started on the hdc.    I have also had my stem cells harvested and frozen because hdc will wash them away and I’ll have them re introduced after I recover.   

So my life has been as normal as it has been since april after I left Guys hospital and tried returning to a few days work.   Right now Im at home for the rest of the week except for scans and blood tests, which don’t normally take too long.  

So ive been at home and apart from the odd bad day of illness or weakness I have been able to mildly potter around the gaff or have the strength to get out and about shopping or visiting.    I’m sorry that I haven’t been able to see as many of you as I want to… (which is really every single one of you reading this stuff) but it has been fantastic for me to get to see who I have been able to.  

Including a day at the test cricket… which turned out to be a £60 wash out!   But never mind; a good day anyway…  my mate, Brian’s 40th birthday party down in ‘crazy town’ sidcup… seeing all my great chums from my sidcup dwelling days was terrific and being well enough to stand in the kitchen (the hub of any good house party!) and chat to everyone was enjoyable.    In fact I had such a nice time (as did the Russian) I didn’t want to leave when I got tired,  so with the host’s permission I got cozy upstairs and had a 45 min nap at 11:30pm to recharge my legs.   It had got noticeably messier on my return with the Russian suitably fired up on cider leading the charge of the dance brigade with Noreen in the living room!

Other pleasantries included gutting out our loft and getting shot of junk at the battersea car boot sale the other Sunday.   We made £170 quid which we put towards an hours massage each!   Yeah!   With cash to spare for food that we’ve been buying in vast quantities from farms shops.   Going as healthy as possible has revolutionized our breakfast with the addition of a £30 juicer into the ivin/Russian family.

At this point I must explain where this change has come from.   Our friend Kate’s mother, Pamela, has recommended a specialist doctor up in sunny Aberdeen who… get this… treats people with mistletoe injection therapy.   Firstly I must massively thank Pamela for putting me in touch with doctor mistletoe, or santa claws as he’s more commonly known…. NAH… NOT REALLY… HE DOESNT EXSIST!    No, a very big thank you to her for that.   We have met Dr Stefan who, very kindly, in his spare time, briefly reviewed my case over a cup of coffee in Hammersmith on his weekend off and told us all about the mistletoe procedure and basic ideas of the technique.   In a nutshell it involves poisoning me with a series of injections to alert my immune system and make it aware it is under attack.   Which it hasn’t realized with the previous arrival of cancer.   So to awaken my systems up to the vile growths inside and attack them! 

Cancer… the under the radar disease.  

Dr Stefan told us many things we can do to help my situation, with some small changes, one of them being the juicer… of ‘chooser’ as he said in his soft German accent.   The Russian also read in the leaflet that in Germany many chemo treatments are administered along side with mistletoe treatments.   My consultant said he has heard many things about this but wants us to wait until after my HDC course before I go to Aberdeen for 2 weeks and get ‘spammed’ up with mistletoe.   My only fear, I asked, was will I have to kiss everyone I see when I get injected… especially in mid winter, no?    A slightly stern and perplexed look back from the doctor when I suggested that might be the main side effect…  ‘ah… zur crazy English humor, ja?’    No, that didn’t happen, I’m kidding…. AGAIN!

So ‘choosing,’  has become the new regime of our mornings… chopping peeling and then waking up the neighbours… BBRRRHHH… BBRRRHHH… BBRRRHHH….. and getting through about 12 kilo’s of carrots a week and a small apple orchard every month.   It is so delicious!   Carrot and apple… my fave!    Once a week we ride out in the ‘Russian mobile’ (a 1943 Russian army surplus ‘T34’ all terrain, field gun tank) and, pardon the pun, ‘shoot’ down to beautiful Kent and raid one or two farm shops for all their fruit, veg and sometimes as a treat, a home made, British farmed, PORK PIE!!!....mmmh hevean! OR A POUND OF SAUSAGES FROM HEAVEN… OR A SLICE OF GALA PIE…. A PORK PIE WITH AN EGG INSIDE IT… OR AMAZING CHICKEN THYS, THE CREAMIEST OF CREAMY BLUE CHEESE AND STILTON AND SLABS OF STEAK AND HOME MADE MARMALADES, LEMON CURDS AND MUSTARDS!!!!    Wow this stuff tastes good… and not any more in cost than the normal supermarket prices.   Beets, potatoes, punnets of raspberries, plums, a sack of onions for £1.50, a 12kilo sack of carrots for £6!     Um bongo… banjo… bingo!!! Job done!

Its not only food that’s changed… oxygenating my blood is very good for me too.   Back in June when I was banged up inside I was so incredibly inactive that I developed blood clots in my lungs and was subsequently sentenced to 3 months blood thinning injections that I have to self administer every evening.   Uuughh injecting myself like zammo out of grange hill!   Or Phil Mitchel out of the west indies… no… east enders!

To try to avoid this and being particularly at risk from having cancer in the first instnce, I have bought… a Davina Mcall endorsed exercise bike… with 8 level settings and a particularly lethargic on board computer to tell me time/speed/distance/inside leg measurement/pulse when it can be arsed to work!  

Apparently according to a snippet taken from ‘the week’ magazine (thanks mum!)   some mild exercise is very good for battling cancer and oxygenating my blood.   It also went on to say that given some of its positive returns that if it were a drug it would be hailed as the new wonder stuff!   So, whenever the call comes for me to go back inside, I will be asking for a volunteer from the audience to help my super support team to smuggle my bike into the hospital for me.   Because of the lack of impact that you otherwise might get from jogging or even walking, I can sit there for half an hour or more on a light setting, watching the telly, and keeping my body moving… the only problem with the exercise bike is… I feel as if Im not getting anywhere with it!   Ha Ha! (bom bom!... I’m here all week… try the steak! Goodnight… err taxi!)

So… bikes, juicers, boxing, new conservatoires, wet cricket test matches… what else has fed my imagination these past months…?

Ohh yeah… the resurrection of my model railway!!!!   Yes yes yes oh yes… having so much time at home has fed my imagination and so I came to the great conclusion that an 8 x 4 foot sheet of wood laid out on our dining table in our new conservatory would be fine!  Being as super cool as she is, the Russian complied with my unwieldy request and for a week at a time I am allowed to resurrect my base board, layout my track, sit in my pants with a drivers cap on every morning “choo choo”ing until my 11 year old heart’s content.   Thanks to the diy super powers that my father possesses, I now have the layout permanently tacked down to the board and a cunning system of storing it outside, along side the brand new house extension!   So not only has he massively helped me in my design and construction of my layout, he, more importantly gave me the space in which to play too.  

I must take a moment to say a massive thank you to my dad for his amazing efforts on the recent building project.   And I know I speak on behalf of the Russian too when I say he has done THE most amazing job giving us this extra room on the back of the house for us to dine in, sit in, and best of all play  trains in… WOOH-A-WOOH!!!’   Anyone who knows my old ‘pot an pan’ will know how great he is at turning his hand at most things, plumbing/electrical/mechanical/structural/arts and crafts ect ect.   He’s just one of those annoying people who can take one or two prolonged looks at something then work it out, take it apart, clean it up and fundamentally, always, make it work/look/feel better.   From making his own picture frames to fitting doors or windows, to tiling your kitchen or in this case, constructing heating and decorating a complete amazing extra room in our house.  He has not only the ability to vastly improve things but also utilize any of the vast array of tools within his possession.   Including the gigantic Boxford metal turning lathe in his shed to fashion a completely new or in some cases, invent a better tool for the job!   Now that is levels of manly-ness and diy ultra skills that I can merely aspire to, let alone achieve.  

Of course being 2 years off of his 70th birthday… sorry pa!... it wasn’t completely a solo effort and a massive thank you must be extended to dad’s very long term and fellow, friend and partner in wall crashing, garden digging, extension building and anything else you can think of… the one the only… Millwall’s very own… Geoff!   He helped my dad time and time again when it came to the de construction phase, the foundation prep and ultimate build of our new room.    Thank you so much, Geoff for your time andyou’re your hard work.   

There is a long list of super stars that were also involved in the bulkier parts of the project, especially on the foundation dig.   From neighbours to ex neighbours, college friends and local chums… to each and every one of you… thank you ever so much for your time and effort.    I must admit, the old saying of “I could watch someone work, all day!” rang very true for me because all I was reduced to was talking, pointing and every now and again promoted to ‘chi waller’ (tea boy!) throughout the build.   The phrase, “you’ve missed a bit” never issued from my lips… I promise!

There are many other people that I have to thank since I left this vast void in my bloggy woggy!    I’m sorry I let it get so big really but it has been so nice to be at home and, when possible, forget about hospitals, doctors and illness.   I generally tend to write this on my days in hospital anyway, which is why its taken me so long to finish it.

So other people I really need to mention and thank start with Sean.    One of the VT boys from the football who in just three days rode on his tredder from Rotherham, in the great north, to London, in the smelly south!   Inspired to get up and raise money for cancer research, for little old me and my stupid illness, he braved the conditions and southerners to complete the 3 day ride.    Thank you Sean, it means so much to me and my family that you would do something like that.   I’m sorry I wasn’t there at the finish to see you in and (if need be) administer any creams or talcum powders to red bits or sore tissues!   ( I woud y’know… I would really!)   thank you Sean.

I’m sorry I didn’t get to see the visions mob that were running in think strong Tee’s at Greenwich the other Sunday.   It was the perfect weather for it and I hope you all enjoyed your run.   To Matty and Fefen, two nutters wanting to put themselves through more excruciating pain for the cause on yet more marathon madness… one of them running off road!   You’re nuts! A big thanks to both of you to too!

And of course Reggie, the star of the opening piece.   He is fighting this Friday for mc millan foundation at York Hall in east London on Friday and being well enough I will be there to watch and cheer him on.   He has asked me to put a link at the bottom of the page if you want to sponsor him.   I’m sorry its so last minute, guys, I have been a bit crap, but its not all been plain sailing.
It was great to see reg.   A big hug and slap of five made me realize how much I’ve missed lots and lots of good mates at work, and family and friends that I haven’t seen for ages… way before my troubles started.


If I have forgotten to mention you for supporting and sacrificing your time on my behalf I’m terribly sorry.   The think strong group on face book has become a ‘read only’ site for me because It is just so overwhelming and amazing to witness all the messages and gestures of support for me.   I really want to reply and comment to each and every entry but it is sadly impossible for me to do so, especially given the way I type!



The link is there please take a look.   And tell your friends and family that this new blog is out.   I’m SO sorry that its been so long… it has been a very undulating period of my treatment and my life, to be honest.   The highs of being out of hospital, the lows of bad news, the joys of almost full independence and the agony of multiple trips to the hospital and the anxiety of more hell to come.   It looms over me like the school homework that hasn’t been done, or the weekly swimming lessons I used to dread in my early life or the feeling of a long bad, arduous experience that is about to wash over me…    I want to start it to get it done!   SJ-FJ… Start job, finish job! 

This last 3 month period of life has been as close to normal as I have been for a long time.   It has given me the taste of my old life again, on certain occasions… but get this next month of hospitalization out of the way and the rest of my life will be THE  most rewarding, exciting, loving, cherished and utilized time one will have ever have witnessed!   

I WILL RECOVER.    I WILL GET BETTER.     I MOST CERTAINLY WILL ENJOY A LONG HAPPY, HEALTHY LIFE!!!

Lance Armstrong wrote in his book that the big C is both the worst AND the best thing to happen to him.   I can see why… I have had a GREAT life up until now and it is my main inspiration for a full return to heath, happiness, strength and work.   Take it from me… when you’ve got your health and the love of the others around you… all that is bad can be changed, all that annoys can be ignored and most importantly of all… all that is good must be cherished.

I love you all and will get this year out of the way and return to the ecstasy that is my normal life.   I promise!   Xxx

www.justgiving.com/rob-dyton


Wednesday, 27 July 2011

Hi again... Some news of a disappointing nature!

Hi everybody! 

Christopher "Milton" Ivin here...  Writing back on my blog once again in times of peril.   For most of you it will come as a shock but yet again the bloods in my body show that I haven't killed off this horrible beast that dwells within and it's growing/spreading again! 

I'm sorry to relay to you like this but I don't want to beat about the bush.   It seems I'm a fair weather blogger. Or actually if you think about it, a crap peeing down with rain, I'm stuck in hospital again, type blogger!   I have been out since the 7th of July and after the initial period of about a week of getting used to  my own home, I have been having quite a nice time, eating, helping with the building works at my house where I can, eating, watching films, eating, enjoying the weather where poss, eating, slowly recovering, eating, scoffing my face, oh did I mention eating? And generally more and more enjoying my time of supposed recovery as days passed by.  It felt like I was slowly getting back to normal after the massive battering my last drug treatment gave me.

So.   What has happened then?  Well as the bum fluff on my chin started to appear and the baby fur a top my swede started to grow this indicated to me that the Chemo drugs were flushing out of my body.   This is the scary times.   The plan was to be in a years period of constant blood tests to monitor my progress and see my cancer blood markers drop away for good!   Sadly the news is that they got down to a low of 15 and them since then have started to rise. Now since Monday at a count of 99.   This is bad.   It's what happened before after my first chemo marathon had completed the number that was supposed to shrink started to rise again.  So now it's back to hospital for another change of tack.   A different plan and course of action.   I will enlighten you with the details as they are confirmed but after a stem cell inducement and harvest which will take more than ten days to prepare I then get prepped for high dose chemotherapy. HDC.   Which does not sound comfortable!   

Trust me I'm thinking positive and being strong and  will NEVER give up but I am scared and it looks initially like my chances have narrowed yet again.   I WILL BEAT THIS AND ENJOY THE REST OF MY LIFE NORMALLY AND GROW OLD WITH MY RUSSIAN!!!  I MUST!!! 

I'm sorry if I've neglected my support with no comments on think strong or writing just a simple hi on my blog but I have been enjoying my time at home and apart from going in to draw bloods for my tests I have managed to put the hospital out of my mind... And have been sleeping soundly! 

But now it is time to face up to the challenge ahead and return back to that place for more fighting.   I am seeing my consultant, the ever inventive dr shamash, tomorrow at 3:30 to get the latest word on my case and what I do next.   

I want to tell you that I vision the future with me very much in it and working and happy and with hair back on my head.   Think of me and send me all the positives you can but also Inna, my mum and my dad too. My support team.   They are going through it again.  After I got the dreaded phone call Tuesday late afternoon I was at my parents breaking the news to them with the Russian. The four of us sucked it up and got positive.  Today I'm a little more down but ok. But if there is anything you can think of to help my support team out please ask them to offer your kind help.  I know from the vast constant wave of support from all of you out there that they will be looked after and well catered for! All you guys have been nothing short of truly amazing.   I will get round to everyone in person and thank them... Wether that be personal friends, family or work friends... Everybody has been overwhelmingly kind, generous and boosted me beyond belief!

Look after yourselfs and your loved ones... Cherrish every day you have and keep helping out me and my support team out even if it just the power of positive love and thoughts!   

The fight just moved on a pace and I'm going to need your help to get through... But I will get through and get better and love my life again!

All my love and powers of positive thought go out to you and yours... Sincerely...

Chris "Milton" Ivin.

Ps... Dr Josh... I will get round to mentioning you In my blog later on... Don't be disappointed! Oh and to protect your privacy I'll mention you as dr joe!!! How about that? Does that help at all? ;-)

Tuesday, 14 June 2011

Bits and pieces from my “GAMEC-S” world.



Hello again folks.  

Guys I’m so sorry for the delay but one of the side effects of my new GAMEC-S “MEGACORE” chemo regime is the killing off of my entire stomach lining.   Stomach lining, like your hair and cancer is a rapidly growing cell.   People commonly hit you with the fact that your stomach lining replaces itself in the space of 3 days and act all smart arsred about it!   What they probably don’t tell you is that medically speaking your stomach lining starts at your front lips and finishes at your ‘back’ lips!   Oooh, sir! And let me tell you, with the chemo killing off the entire lining my mouth, throat and er… ‘bottom’ they have all been hanging in ribbons for that last 10 days! You get the ‘Ring o fire’ without any of the curry pleasure. And my mouth is full of what feels like battery acid mixed with a constant supply of snot and gob!    Uuuggghh!!!!   Painful?   PAINFUL?!? The pain gauge needle has been running in the red for most of the week this last week!   High on about 70 to 90 ml of morphine a day and not doing much in the motion of eating or drinking I have been, at times, 100% sustained on I V hydration on the machine pump too.


Using the blog to serve my every whim… I’ll put out a jungle call to all who read it… does anyone wanna buy my Alfa 2008 syder!?!?!?!?  I am absolutely gutted!   Because of the tumor that has now spread to the back of my Swede, the doctors said I now have to suspend my license for a whole year after the tumor has been cleared from my head.   So the car’s going…  I’m gutted…  it’s a beautiful car…. Beautiful….   Who’ll give me £20 grand… talk to me… sell me sell me!   I’ll take you out to dinner…   I’ll wine and dine ya!!!!    You’ll love it!   All right then….  £17K and she’s yours!!!   It’s a beautiful car…. BEAUTIFUL!

Jungle call B, is also in connection to loosing my ability to drive.   I am also now in need of a half decent tredder!   So if you know someone or you, yourself is selling a pushbike let me know and I could be very interested.   I don’t want to spend more that about a monkey on it (£500) but for that money I want a decent half road half dirt bike that should last me.

Since I’ve been ill there has been a second diary about my time in the two hospitals written by me own mother! So if you want to receive a clear, concise, regular, no nonsense, well written once a weekish update on little old me, then just send an e mail with "mothers newsflash" in the subject title and your e mail address will be added to the group.   It may not be as funny as mine (it better bloody not be!) but at least you’ll hear about how im getting on more that once a bloody month!   Now it looks like I have competition FROM ME OWN MUVVA!!!   ;-)


The other thing that I was gonna ask to everyone tuned in and locked on was a small request from the support team and myself.   Its mostly people with young families or early to workers. Without being too rude… would it be possible to not text either me or my family before 9 in the morning.    One of my mates texted at 7AM once and someone else has buzzed me at five to 8 in the past.   I am on a shared ward but even the sound of the vibrate can be off putting for people.

And when its early messages to my family, nothing gets them moving out of the bed like a text coming in at daft o’ clock.   So far the Russian has set the standard, receiving a text from a friend at 6:20am!!!!   She thought I was in trouble so please guys.   If you are up to your ears in baby poo or bored on a very early train to work… as much as we love the support and messages of love… can you just delay them by an hour or 2 just so we don’t have the frights of our lives when the phone goes early in the mornings.    Please don’t think we’d ever be ungrateful for peoples thoughts and best wishes but I cant afford to have my phone off in the mornings and neither can my support team.   Sorry if we seem ungrateful but as you can imagine its an edgy time for us all.


Quote Of The Year Award:-
There was a large chap in our room for a couple of nights.   I never caught his name but he snored loudly… so he scored very lowly on the ward scoreboard!   It was a quite early evening and he was talking to his visiting wife.   And she came up with the quote of the year for me....
“Yeah” she said, “I'll be here again, Tomorrow at about 6:30 after I've fed the dog!”
"Yeah the dog comes 1st eh?" he joked...
“Yeah... the poor thing... at home all on her own!!!
I thought to myself, you're joking me!!!   That is priceless!
Killer Mood?
AAAHH!!! NOOOO!!!   One of the health care assistant’s jobs is to go around every bed taking everyone ob’s.   (Observations are people’s blood pressure, oxygen, sat’s and body temperature.    Noted at various points throughout the day).    Normally it would take one of the healthcare assistants about 10 mins to complete the ob’s of our four-man ward.    One of them, on the other hand, likes a chat, (putting it mildly!) and was with rob.   Rob’s one of my mates here, who’s been opposite me most of the time and was by now getting a good lecturing about the high’s and lows of DVD ownership and the superior quality of blu ray discs.   
“Infact its for those main reasons that I thought I’d better get on and invent this new high def video format!”  
He almost seemed to be saying.

I was listening to their conversation; probably more than rob who was by now just throwing up the odd courteous
“Yeah?.... really…. Oh right…”
and I was getting more peeved cos I was next on the machine and I’d just bosched a sleeping pills and was waiting to get off to bub-byes… 

So finally, I think he’d noticed that rob had passed out so he ambled his way across the room and I could see that one side of my magnolia curtain (not blue like at guys) had darkened with his ample shadow…  
“knock knock, chris!”  
In he fumbles, all waistline and stumpy arms… 
“Hello Chris how’s the mouth?   Cant talk..?    Well try to keep eating if you can, to keep your strength up.”  
I stupidly grunted a response…
“Uuugh…   not easy given the low fi quality of the food in this joint”
I hashed at him.   
“Aww you’ve got it easy mate, compared to me…   I still live at home with me mum in Essex and I’m forced to eat a roast dinner every Sunday…” STUNNED SILENCE… he continued…
“In fact, tomorrow’s Sunday, innit?   I’ll have to put up with one of her full roast dinner’s tomorrow afternoon………………………………………”  

I could’ve killed him, there and then…   with what ever was in my hands at the time…   a lip balm….   There you go… I would’ve killed a man with my bare hands, assisted only by my own lip balm.   I didn’t kill him…   but I did say, I know how bad it must be, sometimes for him… and how sometimes in life you just have to take it one week at a time.   Don’t rush things mate; you’ll be all right.     Y’ KNOB!


Four about the last 5 days there was a guy in our little ward called Paul.   Nice chap keeps himself to himself and is partially sighted.    He’s a great room mate, no trouble what so ever and most importantly of all… doesn’t snore!   The highest of all qualifications on a shared ward CV.   He doesn’t give a toss either… I don’t think it had anything to do with being partially sighted but one day im sat there with me dad when pauls jumped out of bed and spun away from us, grabbed the pee jug and just started slashing away… swinging his moons at me and the old man…  fair play… when you’ve got to go you’ve got to go!

Paul also has a text machine that can speak out the letters and words that he writes and also reads him incoming texts that he receives.   He clearly has a lot of friends because a part from listening to a bit of music from time to time he never did much else.    But he was forever playing on his text machine.   He’d have it stuffed into his face, about 5 centimeters away from his right eye, furiously crunching away on the keypad.   It would never be up loud enough to annoy but when he first showed up I couldn’t work out what it was he was doing.   But then one quite night I was lying there trying to drift off and I could make out some of the Steven hawking voice words buzzing out of the machine and phrases he was writing.   So all in that robot hawkings voice it went along the lines of  “kiss… kiss… see you tomorrow… Gaylord… kiss… kiss… end of message!”   I admit it… I laughed out loud at that… I’m sorry Paul!


ON Monday the 23rd I broke another duck in my year of first’s… surgery.   Never experienced it before.   Weird day that was.   I was prepped and taken down to theatre by 9am and met the anesthetist.   Classic surgery type… “ya ya… ive got a helicopter and gimbal video system in the Cotswold’s and we’ve got the contract for shooting all the external hele stuff for 2012… ya, amazing… making a packet too, old boy ffnar ffnar!” this was the conversation I was having with him when he asked what I do for a living.   Im sure it was part of his spiel that he gives to all his ‘victims’ as he’s in the process of knocking them out!   The tosser!

The next thing I know im walking up high in the roof of a massive new shopping centre that has been built under Peckham Rye Park… and get this… I’m looking for my tent!    In the steel roof beams of a shopping centre that doesn’t exist built under my local park… and then… I fall off! And im falling and falling and falling toward all the shoppers below and I look down to assess my fate then I look back up to where I was and I see my dad… eating a packet of crisps… and he said to me… “Afternoon… are you thirsty?   I was after my leg op!”
“Uuugh?... am I what?... oh… oh im back in good old bed 17”.   Phew… mad dream, maaan!  Thirsty?… yes… yes I suppose I am a bit parched.    So I lean over to my trolley table to pick up the little plastic blue beaker that has my water in it and BANG!!!!   Someone shoots me in my left shoulder… medic! Man down, medic!

Faaaaackin’ hell!!!   What was that?   Holy moley!   Is there a javelin sticking out of my shoulder blade that I haven’t noticed, or something!!?!  This new pain was incredible.   Every slight, little move in my upper body would promote an eruption of agony in my left shoulder.   Goodness me… what did they do to my body?   Was that chinless wonder swinging his helicopter ham fists about inside me all morning or had they not taken their knives down to the gippo site to get sharpened this morning?

I dare myself to look down at my chest… not even phased by the bright snow white nylon surgery stockings ive got pulled halfway up my thighs… I can see half the bloody new east London line extension progamme hanging out of me chest!  Nah… It was a HIC line and it came with 3 days of murderous pain and post op problems.   The first night it took me a full 10 whole minutes to sit up in bed to swing my legs out and go for a pee.   Then as the days and pain passed there were more comical moments where I was filling a empty jug with icy water and I couldn’t work out where all this extra pain was coming from as the jug was getting filling up and getting heavier!   The good news is that ora-Morph tastes like red bull and Jager bombs! Mmmh!  Sweet and nice and mash you up, innit?

Finally the other day I can call myself a true Millwall fan.   Because I got blood on my Millwall polo shirt today from an injection seepage... (Yeah a MILLWALL POLO shirt! Classy eh?)   So I now look undoubtedly hard, yeah? But sadly the blood was spilt it in front of me mum who has now got finger of hand soap with some kitchen paper and is furiously working away at it just to break it up for now!   How hard am I?   Yeah?   Want some? I’ll fight yer… hang on… (Out the way mum and wipe that soap off, im about to have a tear up here!!!!!    Miiiillllllllwall!!!!


And now a massive list of thank you’s…

Massive thanks, to my cousin Paul for the old family cine DVD he sent us. It’s amazing and really funny! Really funny! The thing starts at my auntie and uncle’s wedding in 1966 and goes right through the years to when my sister was a tiny baby on one of the many family holidays on the Isle of Wight in 1979.    Theres a great shot of my old granddad P sat on the beach fully suited and booted with a pint of milk in his pocket!?! That’s a family thing!   Yup, even I remember the milk!   And my dad digging really deep holes for the kids to hide in... Whilst wearing brown nylon trousers and looking like Mickey dolenz from the monkees! Stylish man!   The best one id my dad in a suit, looking like a 2 pin plug on a kids tricycle in he late 1960’s riding towards the camera with a royals fag hanging out the side of his gob!


The F1 boys have just started a "mil vember" for me this month!   £5 in all money goes to cancer research uk  (my chosen charity!)   for those that don’t know… ‘Movember’ is a thing for charity where blokes across the nation grow beards and moustaches for their chosen charity.   Moustache and November, hence the word movember.    But the guys have adapted it for me and I get to go up and see them in Silverstone to judge the best efforts and pick a winner on the Thursday before the race.   So if you see any mustachioed weirdo’s at the next couple of races that’ll be the reason why!   They are also holding an f1 memorabilia night that night too auctioning off all sorts of f1 gear (I Guess) to raise even more money!   Im really looking forward to going guys…   thanks so much!


I just wanted to thank pronto for all his support and kind words through the football season, especially with all what he’s going through himself.    Hope all’s well with you pront’s .   He’s been phoning to see how ive been and passing the day here and there to keep me going which is really kind of him.

To my Bessie mate Steve, up there in the pool!   He ran the London marathon for me back in April.   And amazing effort and raised £3,000 or more for charity too.   He said he ran it with me in mind all the way round the grulleling 27 mile course, getting sun burned and mashed up plates of meat in the process.   Thanks Steve, love ya bud.

Finally a massive thank you to my mate Graeme and his amazing T shirt pics on Facebook!   There is a group, should you not have already discovered it called Think strong.   My mate Graeme has been talking to me about printing T’s since I met him back in 1993.   He thought that there might be something in it for him with all his idea’s.   Well look how popular it’s been already, mate.   Its great.   And again the best ideas are the most simple… a bit like my friend greyham!!!!

If you do go on face book and check it out please bear in mind that the celebs have donned the T shirts in good faith so no nasty comments towards them, pls!

Righto…  that’s it for another month or so…   my megacore 4 day dose will begin again on Sunday.   Two Sundays ago my last one stared at 11:30am Sunday and was finished at 5:00pm Wednesday afternoon, a 77 hours of solid drug and flush intake.   And my body’s still feeling the effects of it now with my broken mouth!

Until the next time my friends and family… take care of yourselves…

M   x






Thursday, 9 June 2011

Temporary line delay's due to adverse snot conditions!

Hi everyone...

There is a new blog almost charged and ready, but not finely polished just yet... And it needs a little other work. SUNDAY was the day I was planning to put it up but clearly I haven't and I have also been struggling to stay in contact with anyone through any form of communication.

So, below is a text I sent to someone explaining why I hadn't been in touch. I then decided to cut and paste it and make it my text template for the time being.

And then it struck me... Hang on... I've got a blog...

So, like a "back in 5 mins" sign hung on the shop door... Here is a round up of my last 10 days in a nut shell.....

"Hello mate. Sorry I can't reply, I'm not having a very good week/10 days. One of the side effects of the drugs is the wall of my mouth and throat linings are all falling off. My tounge looks like a bbq'ed split sausage and I have sores and a throat you would only get if you spent two hours gargling shards of broken glass once a day!  Still never mind. It could be worse. Oh hang about... It is... The same is happening to the lining in my nose so the constant runny snot stings inside. That's not as bad as when I get the nose bleeds that don't clot because of other side effects in my drugs. So because my nose is blocked I dribble about 20 hours a day! (no change there then! ho ho)   And dribbling makes my lips sore and go through 3 or 4 towels covering my pillows a night! And because of the constant dribbling it makes it very hard to use my computer or text without covering my phone in dribble and blowing myself up! Woo hoo! The joy's of cancer treatment, eh? Still... Morphine has it's upsides!!!

Monday, 23 May 2011

HARDCORE XXX PORN…? PAH! (this one should be a popular read!)



Hello everyone… hello hello hello! I know I know.   I know what you’s lot are gonna say and I know what I said! “I’ll do me blog I’ll do me blog” I says… “when when when?” you says… “its coming soon”   I would says…..   AND HERE IT IS!!!

…. and with reference to my last passage (barring the temp one last week!)   NO THE FRY UP DIDN’T KILL ME! Smart arses!   But it did change my life, albeit for a short time.    It was that good that I’m still banging on about it now!

So…. I want to talk firstly about the most current of current affairs and let you guys know exactly how I am right now.    This very moment im the best ive been since friends saw me in Madrid at the end of last weekend. (9th)    but since then I have been on one of THE biggest roller coaster high/lows I never want to re-encounter.

In essence I had a lovely Monday afternoon, with a couple of chums sitting outside a nice bar in Madrid with a highly desired pint and a good lunch.   Travelled back in the evening feeling right as rain.   Got home, kissed the Russian and settled in.    Tuesday morning I was at the hospital to give bloods for a Wednesday afternoon results discussion with my consultant, Simon C.   If I was totally 100% honest with myself and with the benefit of hindsight I knew things probably weren’t tip top inside.   But with not wanting to worry my family (1%), not really wanting to think about it myself (4%) and keeping my thinking on a positive vibe and trying not to be paranoid (95%) I sort of had a lack of confidence feeling deep in the back of my brain.   As did my mum who came up to guys to meet us about an hour after I was due for the meeting.   Completely un-expectantly!

But all mums worry un-necessarily right?

So.    As we were waiting to see the doc my fears were confirmed when my phone rang in the waiting room and it was a receptionist telling me that my consultant had changed and I was due at st Bartholomews for and another afternoon meeting the very next day.    Oh dear.

My consultant, Simon had previously told me that since my original chemo had finished on the 4th of april the drugs would still be affecting my body for a long period of time after and that the idea is that my body will be able to finish off the devil inside of its own accord.

Not to be.

Simon, my Doctor, is a funny man, can nearly always be suckered into a conversation about cricket, has a very quick, dry sense of humour and loves to tell me which major summer sporting events he still has not got tickets for!   He is also a DEADLY serious person and our hands had barely parted from the shake and he was looking worried, forlorn and already telling me my cancer blood markers were shooting up.  The cancer is growing and re spreading.    We are to part company and you and things are not good!    Bang bang bang!    Your counts are up.    You’re on another course of Chemotherapy!   You will start very, very soon.   Meeting Ajourned!

The next day I was with another doctor.   Dr Shamash.    He was now telling the 4 of us pretty much the same thing.    Again.    Amazing speed.    We had made our way to st barts with an overnight bag pre packed and by 7pm I was in my current bed, (17 for the train spotters.) 

MY HEAD WAS GONE!   I’d lost it!   Big time!   With all that had gone on in the last 24 hours I had lost my hope… and let me tell you now that HOPE IS EVERYTHING! I hadn’t realised it at the time but I was in pieces!   And then…   and only could something like cancer have such great disastrous timing… they hit me, for the next 4 days of THE most mighty, mega, destructive, chemically created force man can ever conjure!   (I’m sure there are more violent weapons of war in reality but this, my friends, was unbelievable!)

“Its official… My regime now is no longer hard core…   its MEGA CORE!”   These drugs are baaaaaaaaaaaad!!!! I am not joking when I say this but compared, ALREADY, with what I had for 12 weeks on my last drugs course before and just what we’ve ALL been through in this week…   THIS IS…. MEGA CORE!   All this weekend just passed the Russian has been telling me so many things that I’ve said and done that I can’t believe.   Simply because I have ABSOULUTELY NO RECOLLECTION OF SAID EVENTS…. WHATSOEVER!!!

No matter where I’ve been, what ive done who im with, in the past I have never completely forgotten whole days… or events!    One such example was when I was in bed, ramped up on drugs lost all hope and being given IV steroids…. (oh yeah! They’re back too!) I turned to my mother and ive said something in passing… I can’t remember and then I look at her again and she’s crying!   Just from what I said or how ive said it.     I have no idea what was going on.     Chuck some fresh stonewall boredom into the room and you’ve got a GREAT party to get to!!!!  I’m telling you!!!

Because of the temporary hope loss… (turns out I’d put it in me wash bag before a shower!) my mind was freewheeling.   The mental battle has been incredible.    I have been fighting off anxiety and panic attacks on an almost daily basis.   Including at home.    Yes I was lucky to get 3 nights stay at home but return everyday.   But when you’re having a panic attack in your own living room and the Russian is knocking up a bit of dinner just 10 feet away in the next room… things can get very surreal!   Keep your breathing deep and steady, Eddie! Don’t think about anything other than your next breath!    That’s all you need.

Ive said to some people before being on chemo is like the very plateau of your very worst hangover.    Fuzzy head.  No enery. Absolutely no thought patterns or brain stamina whatsoever.   But now… the regime has just got worse!    And im at the end of a two week regime 1 of 3.   This chemo is called “GAMEC –S”     Mega core to me and you!   Last time out on the “BEP” regime I was always thinking day at a time…  now one can get down so bad that one can only just focus on the next hour!!!!   That’s all!!!


I’m not going to leave this passage there on that note…. I’m just going to quickly say…. Big up all the French open Tennis massive.    I was supposed to travel there this week.   Got a few calls and texts from Paris.  Especially at 16:10 last Friday, when my train was due to take me there.   Was there an empty seat in the group on the train?   Ha. I’d planned that journey in my mind!   And selected the donkey I was going to ride triumphantly into town on…. Fanfare blazing and palms for the road!   (You’d most probably have to be religious to get that one!)

 Scotty called me at exactly 16:10   (probably to complain to me his seat was facing in the wrong direction or that the table was slightly chipped! ;-)  he gets a winkey wankey smiley face, purely because he was probably missing me and wondering why I was so late for my train….   A whole year late it looks like bud!  

my other special shout goes to matty H and “Chavvey bollocks/muggy bonehead!!!”.     Im no expert in making tv but I did wonder if ‘stitch up rig week’ springs to mind.   They both went out instead of me to do the set up.  Im sorry I did not get a chance to pass on the previous years rig notes/tips and tricks that I have, that I promised you. (I seriously HATE job preservists!) but as anyone who has worked for Americans… (and I have to be careful here cos I know many of my North American friends/collegues/cousins…. Come to think of it…  my actual real North American cousins too…((HI There!)) are reading this right now!) it can get very… er… “fiddley” to quote my great camera supervisor “the Doddfather!” when such a big job for 3 massive clients is to be undertaken…. Especially with charter’s “so they don’t wander off “ company policy of chaining their bloody camera barrows to something thick, stationary and dull for 18 hours a day!…..  you can most probably tell what’s coming next…..  a brief pause so that all French open crew can please now feel free to fill in your favoured crew member name below… sigh! 

 “a bit like the camera barrows being chained to

 ….………………………………………………… from cameras/audio/vision/lighting/rigging/roy/sam’s office”  (delete as you wish!)  

That’s one of your more common ‘page 1’ warehouse gags!

Yeah but seriously so sorry to those 2 guys because im sure it was hard and I didn’t get to share some info that might have made it easier.   But when you are SO out of it on drugs that not even remembering that you’ve been arguing with the Russian as to whether or not this is the second time you’ve made a little choc cake “delivery” in my green NHS jammy bottoms today or not is THE most concrete excuse for forgetting to do some thing I have used in my life…. Or even in the whole world of excuses EVER!
 
Matty, by the way is another amazing person running a marathon for me!   Bloody hell I should be a lot kinder to him from now on!    Chavvy bollocks/muggy bonehead (Mark, to his social worker!) on the other hand is by now, no doubt up to his own body weight in cheap French plonk but hey….   If it were up to me I’d be there doing exactly the same thing at exactly the same time, am I right, Markoni?   ‘DAS RIGHT, YOU MUGGEY BONEHEAD!!!   OHI OHI… CHAVVY BOLLOCKS…. GET ‘ER WHAT SHE WANTS…  ANYFING…GET ‘ER A STEAK MEAL!!!   OHI OHI!’   

Ahhhh…. Paris….. So romantic in the spring!

See you lot soon…. X

Friday, 13 May 2011

Ding ding round 2!.... I'm really scared!

Hello Guys!  I'm back in hospital.   The cancer that was being killed off has started to grow back, fast. Faster than expected.   I'm ok. But I am literally crapping myself. This note is just to get the message out there as quick as poss to all my family and friends. Please spread the word that my blog is back in business. Please don't inundate my family with the how's when's and why's just yet. Once my treatment is settled in I will get up onto the web and explain all.

It's happened very fast and tomorrow the 13th of may (which just so happens to be a Friday! Bad luck for cancer!) the quacks are hitting me with new drugs!   Only this time it will be worse and my chances have narrowed some! Don't worry. I will be giving a full account of the last few weeks soon but for now. Pray for me, if you do. Leave notes on the page because they help me keep going and by all means offer any kind of support to the greatest support team the universe has ever known... My mum (a human who has more capacity for love and devotion to being a mother than anyone ever)  my girlfriend, Inna (the irrepressible Russian who will singlehandley do all she can to make sure that we will grow old together) and my dad (the shire work horse who wouldn't flinch for an ato second when it comes to fixing, fetching or generally being there to absorb all the technical speeches!)

Speak soon everyone...
A very scared  Chris 'Milton' Ivin.   Xxxxxx